Mid autumn festival is an important traditional Chinese holiday for family gathering. In 2003, the hemophilia home of China (Shanghai Branch) and Shanghai RAAS organized a PWH meeting in a park at down town of Shanghai. Participates number is 27, including two delegates from RAAS.
Limited by personal condition, PWH are not easy to join social activities. So when they heard there would be such meeting for hemophilia people, many of them come to the park, even some of them were not invited considering their health. A man with serious pseudo tumor on his chest came to the meeting by the help of his uncle. Being asked why they are so enthusiastic on patient meeting, the answer is that we have not common sense with other health people on various aspects, such as daily living, working and marriage. Patients and family members talked about problems encountered to hemophilia society in Shanghai and also exchanged ideas and experiences from their struggle against hemophilia, HIV and hepatitis C.
By PWH’s suggestion, there will be a new meeting held later this year.